I’ve been silent on FB and my blog for many reasons. One of the big reasons is, I’ve opened up to close friends about how I was really doing and shared my fears/thoughts of life in the future, only for them to freak out on me, tell me to snap out of it or that I was fine, and was overreacting. At that time, all I needed was a listening ear, no responses and someone I could simply talk to and be honest. Getting that kind of reactions from close friends really put me on edge. It’s one thing when strangers and acquaintances say mean things; it’s another coming from close friends. I clammed up and haven’t really opened up since.
Anyway… I hope I don’t offend anyone with this blog post. It is not my intention to point any fingers or call anyone out. I’m strictly being completely honest. I don’t say the following for any sympathy, empathy or anything of that sort. Honesty 101.
You have no idea how the simplest things (or luxuries as I call them now), can be stripped away. I don’t wish my situation on anyone, nor do I wish anyone had to go through what I did. Sacrificing something that defines one as a woman isn’t something I’d ask or wish upon anyone. Not even my worst enemy (which I don’t have any…ha, that I know of). I don’t regret my decision at all.
I only wish my life could go back to the simple days. The days I could fully extend my arms, do 50 big-girl pushups without stopping, pick up a pack of water and not drop them, etc etc. You have no idea and hope you never will. I don’t expect people to understand or comprehend my life now. I’ve been extremely quiet on Facebook and my blog. Part of me died at my initial double mastectomy. I’m finding that part again. Life with implants, pain and all that comes with the territory. As much as I try to go back to the person I was before my surgery, it’s not possible. I can’t pretend or live in the fantasy world. I did for a while, and snapped out of it because it only brought me more frustration. It’s not healthy by any means.
Sometimes I get really mad at what I lost. Nothing comes simple anymore, but I’ve learned to find beauty and patience in that. My new normal will hopefully continue to get better. My range of motion will hopefully improve. My pain will always be there, but maybe it will someday not be there. Someday I’ll be able to sleep more than 3 hours at a crack. Hopefully someday I can get out of bed without feeling like I’m 90 years old. Jogging a mile won’t feel like I just ran a half marathon. Gosh, running and not having pain would be a milestone for me. Gosh, no pain in general would be an accomplishment. There’s pain – physically and emotionally.
I struggle with things every day. I’m honestly not doing as well as I thought I would be doing after this second surgery. I’m two months out and still dealing with things, some I just don’t want to talk about or bring up. I was told it was simple and easy with less complication. I had no idea I would not bounce back physically. Gosh, 6 weeks after my first surgery I ran a 5k. 6 weeks after this second surgery, I was benched still and letting the nerve damage/pain heal. Quite frankly, everything recently is wearing me down mentally. I’m making the best of it and seeking things out like yoga, which is gentler on me. I can cycle on the trainer, and that’s my happy place; my first love. I’m doing that 2 times a week. Yay, for the little things. Even still, I still struggle with certain aspects of yoga and cycling. Some days I have no problem picking up my bike and putting it on the trainer. Other days, I’m in pain and have almost dropped my bike. My new normal. Such is life. Yay!
I want to go back to when days weren’t consumed with scary thoughts and what-if’s. Knowledge is power. There are days I wish I never went through the reconstruction process. There are days I want the implants out. I still worry and have my moments with the next big decision I’ll have to make, a hysterectomy. I worry about upcoming doctor appointments with my oncologist and gynecologist.
I am not upset with those people who complain or bitch about their daily struggles, being sick and not being able to run or workout for days, having a bad day at work, and the list goes on. I’m not pointing fingers, but it’s frustrating. If that was all I had to worry about, my life would be pretty darn perfect. Being sick isn’t that bad. Inconvenient? Yes. Not being able to run really isn’t that bad. Inconvenient? Yes. Having a child dump cheerios on the floor isn’t that bad in the scope of things. Inconvenient? Yes! Grandma wants to send your son to school with a Mohawk and that’s your mountain for the day? It’s truly trivial in the scope of things. Don’t worry, the gel will wash out. That Mohawk isn’t really a problem after all when something more serious and legitimate comes up. PS: Live a little and send your son to school with a Mohawk! Lol J
Honestly, it’s nothing in comparison to losing your breasts to prevent cancer. If I could take that sickness or bad day away from you and put it on myself, I would. The biggest thing I struggle with is listening and hearing friends and people complain about such minimal things in life. I complain. Trust me. Ask the few close friends in my life. Please find patience and gratitude in your life, and think before you speak or post things on Facebook. Your life truly isn’t that bad. Be thankful for those little challenges that cause you to step back and have a little break in this race called life.
So what if you can’t workout? My workouts consist of crap. I can’t do what I once was able to do. I do a minute plank, and my chest and upper body feels like it did a killer upper body workout that night and the next few days. I jogged .25 miles, and according to some that’s not technically considered running, and my chest felt like it was being ripped in all places. It’s my new normal that I hope gets better in time. I’m not bitching about that on Facebook, Twitter or whatever. I would love it if I could find a personal trainer who has experience with double mastectomy patients. No one wants to touch me with a 10-foot pole. There’s more to life than working out.
Physically I will learn to accept this new normal and figure out how to move forward. I’m coping and having fears. I’m learning patience with myself and my limitations. I’m slowly getting back into the game, but it’s more like a tortoise walking through peanut butter, if anything. I’m constantly being asked when I’ll be back to things or if I’ve just completely given up. If only you knew! I started doing yoga, a very basic introductory kind of class, and it’s been great. I cried after the first class because I couldn’t do everything and there was pain from random movements. It was a great class, but hard accepting the new normal and limitations. Hard seeing my chest deflate and become pinecones while in down dog because my pec muscles pop out and contract randomly and oddly. I did what I could, and didn’t do what I couldn’t. I knew my boundaries and the instructor was great with helping me modify.
I have gone through the grieving process. I still go through random moments, and think I will for the rest of my life. The simple fact is this BRCA gene doesn’t define me by any means. I won’t let it. I don’t want you thinking I’m in some black hole or dark, horrible place. I’m not. I have my days – More so lately, than ever before. Sarah’s one-year anniversary from her diagnosis is coming up. My one-year of finding out I was BRCA1 and my roller coaster of events and decisions is coming up. I find myself reminiscing, wishing I could go back to life before this surgery. I find myself stuck in one place, like standing still, while watching the world spin around me. I feel like I had this huge support system in the beginning, only for it to dwindle down. I’ve lost friends throughout this because I made the decision and they didn’t support it. I’ve lost friends because of comments and reactions to blogs. I feel alone at times. No one around me understands what I’m going through and will have to continue going through in the future. People don’t understand.
“If they only knew. If they only knew what they couldn’t see. If they only knew how hard she worked. If they only knew the struggles she’s overcome. If they only knew the battles she fights everyday. If they knew, that behind her smile, was a story you would never understand. If only they knew…”
I don’t regret doing the surgery at all. Please do not think that. I do have to say, whoever said implants were squishy, lied! LOL. I am extremely thankful and blessed that I had the knowledge I did. The knowledge to be proactive. I’ve been told it gets easier over time. I am blessed to know and be able to have amazing doctors and surgeons operate successfully on me. I am thankful for my current state of health. I’m grateful for all the people I met along the way and continue to meet.
I would love a time machine and be able to go back to a time when I thought life was tough.
I guess I say all of this to emphasize not taking the simple things in life for granted. It’s stupid to complain about some of the things complained about. Perspective. Not everything needs to be blasted or complained about on Facebook or on the next Social Media site. Everyone has bad days and days where they aren’t feeling the best. I get it. We all complain. Your life isn’t ending. That run will always be there for another day. The gel will wash out. Use that garbage disposal, called the dog, to help you clean up those Cheerios. Sometimes, you just have to accept that which you cannot control. Doesn’t mean it needs to be treated like the world’s going to end. I’ve had friend’s text or email with this or that, and honestly, I have to laugh. Yup, it sucks. Unfortunately, that’s life – full of unknowns and curveballs. If only you knew. If you cannot workout, listen to your body and let it go.
I’m alive, healthy, breathing, blessed, and thankful for my journey and what it’s taught me. This is my journey and my new life. I will find my new self, continue to move forward and become an even better person.
There’s plenty to take from this blog post. Some are going to attack me personally for what I’ve written, feel like they can’t come and “complain”, some may even stop talking to me for my bluntness. I don’t care, that wasn’t my intention at all. I’ve learned there’s more to life than that petty and insignificant ant hill standing in the way. I’ve lost plenty of friends, even best friends, that losing one more won’t offend me. It’s a reflection of you and you’re character, not mine. I have stepped away from social media. When I’ve gone on Facebook, I’m happy to see friend’s successes and failures, and life events. It’s hard to weed through people’s complaints because I’ve gained a perspective and wish so much so that others could be gracious and thankful for their accomplishments and minimal setbacks instead of having to go through something like my sister and I have had to go through. Get a grip on life, step outside your world, and gain a bigger perspective. Being consumed with the trials and difficulties in life causes you to miss the blessings that are always present. It may take some looking and may not always be as bright as we want, but they are always there… just have to open your eyes!